NSW baby first in world to receive breakthrough epilepsy treatment | 7NEWS

53 minutes ago The News Room

Eight-month-old Bodhi from New South Wales has become the first person in the world to receive a groundbreaking treatment for KCNT1, a rare form of epilepsy. Through the new Innovative Therapies Pathway developed by NSW Health, Bodhi received the experimental treatment within six weeks and experienced a dramatic transformation, going from 50-60 seizures per day to virtually none. The Sydney Children’s Hospital Network’s streamlined approach to accessing precision medicine for rare and serious conditions allowed Bodhi to regain developmental milestones and quality of life.

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